I got my second shot of the Moderna covid-19 vaccine back on May 22. Like many people, I had some arm soreness, some body aches and sleepiness, but after two days, I was fine. In fact, I was better than fine. I felt about as well as I have in the past year. Although I haven’t joined the covid “long-haulers” community, my body hasn’t been right since I had a […]
I received the first shot of Moderna’s covid vaccine on April 24. It turns out I was excited, giddy even, to get vaccinated. I went in with lots of hopes, like flying across the country to see my family, and getting rid of the post-acute covid symptoms that have plagued me. I was ready for things to be a bit iffy with my tick-borne infections, and I had a plan […]
Let me start by saying I had no question in my mind that I would get vaccinated for COVID-19. I wasn’t sure when or which vaccine, but I have family I can only visit by plane (driving from coast to coast roundtrip once last summer was enough for a lifetime). So I knew that, unless specific contraindications for people with chronic Lyme Disease were published by the FDA or CDC, […]
When I last wrote, I was about to start a higher (and yet still minuscule) dose of disulfiram. After 12 weeks at 62.5mg once per week, I increased to 125mg once per week on January 11. I stayed at that dose until my last 1/2 pill on March 22. Here’s what happened and what I learned. Lyme Flares and Herxes The first two doses of 125mg of disulfiram gave me […]
I have now taken 12 doses of disulfiram at 62.5 mg one time per week. Taking it at such a low dose and so far apart, has allowed me to watch what happens after each dose. I chose this method because I had good results doing something similar with the coil machine back in 2011. Going at a slow pace, with a lot of time in between, allows the herx […]
Let me start with the update. Tonight I take my fifth dose of disulfiram, 62.5mg in the evening. Each subsequent dose after the first one has led to a smaller and smaller Lyme herx. At this point, I think I will increase the dose after the sixth dose (no need to knock myself out for Thanksgiving). The herxes are less apparent in the headaches, brain fog, and other neurological manifestations. […]
Two days ago, on October 19, I took 62.5mg of disulfiram. This is the third time I’m taking it, after stopping in the past due to side effects. Each of the past two times, I started with a different idea of where the disulfiram fits in my battle against Lyme Disease, and I have a new idea this time. Each time I stopped disulfiram, I could see the benefits, benefits […]
I had such good intentions to write about what was happening with disulfiram as I took it. But then COVID-19 happened, and a sick housemate, and I got what I think was a mild case, and when we were better, we got into making masks for friends and family and somehow it’s already July. That said, I have much to report. I took disulfiram for 97 days. Some things got […]
When I realized that I hadn’t had a respiratory infection since 2001 after my Lyme “flu,” I had a fantasy that if there were ever an epidemic respiratory disease, the Lyme bacteria would protect me. Some people I spoke to said that the way Lyme disease changes the human immune system does two things: first, it suppresses the part of the immune system that tries to attack the Lyme bacteria; […]
For the past few months, since I stopped taking disulfiram due to side effects, I’ve been using the coil machine to try to stem the resurgence of Lyme disease and Babesia that have been slowly waking up. Things got worse at the end of January when I have my usual seasonal Lyme disease flare. Since then, I haven’t been able to get Lyme or Babesia under control. I had planned […]
Coiling for Lyme 